AMSI-Arthrogryposis Multiplex Congenital Support
$930 donated to date
THEIR MISSION: To provide and encourage more understanding and mutual support among anyone affected with the diagnosis of arthrogryposis multiplex congenita (AMC). To create a higher standard of AMC awareness by means of Conferences, Meetings, and Studies.
THEIR VISION: To provide educational material to new parents, or soon-to-be parents regarding the diagnosis of arthrogryposis multiplex congenita (AMC).
To provide a resource of information to the medical field to include, but not limited to, occupational therapists, physical therapists to assist them in the treatment of a child or person with the diagnosis of AMC.
"AMC is not a roadblock, it is simply a different path." - Kaman
About Arthrogryposis Multiplex Congenita
What is Arthrogryposis Multiplex Congenita?
Arthrogryposis, or arthrogryposis multiplex congenita (AMC), as mentioned previously, is a generic term used to describe the presence of multiple congenital contractures. The word arthrogryposis, arthro, joint, gryp, curved, literally means curved joint (implying that it is fixed or stuck in the curved position). Thus, arthrogryposis multiplex congenita means curved (fixed) joints in many (multiple) areas of the body, which are present at birth (congenita).
A contracture is the limitation of movement of a specific joint, in other words, a joint that does not have a full range of movement. The contractures in most forms of arthrogryposis are usually nonprogressive and involve more than one body area. The word congenital simply means that the contractures are present at birth; that is, they have occurred or been produced before birth. For the purposes of this book, arthrogryposis is defined as congenital nonprogressive limitation of movement of two or more joints in different body areas. Occasionally, there are conditions in which contractures are progressive. (Source: Arthrogryposis: A Text Atlas)